‘Surviving Christmas with Chronic Illness’
Have a read of my article, written for Fibromyalgia Action UK:
Please let me know your thoughts via the post or social media – would love to hear from you!
With thanks in advance!
ES🙂Â
Have a read of my article, written for Fibromyalgia Action UK:
Please let me know your thoughts via the post or social media – would love to hear from you!
With thanks in advance!
ES🙂Â
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Hi Erica, I hope writing this article made you feel heard, and thank you for sharing it with us. I learnt some more about fibromyalgia. I’m sure you know that one of the benefits of age, whether one has a serious chronic illness or not, is being able to tell people how one really is and what one really wants and needs. It’s good you’ve started so young, keep it up. And I hope you have a good Christmas and New Year among people who understand.Â
Thank you Maggie P for your kind and caring comments. I will definitely continue trying to spread the word and bring knowledge of this terrible condition forward in this country (UK). Thank you for your understanding.
Hey Erica. I hear you. I’ve sent the article to my friend for her to read as I know that she’ll value it. The continous masking of conditions because no one can understand that you are going through something that they aren’t is frustrating. The repeated ‘advice’ on how you can feel better if you just do what they’re doing. It’s exhausting so it beats you into submission and you get quieter. No one knows how you feel and you get quieter and further isolated. It’s difficult to speak up when no one is listening. This was wonderfully written. Thank you for sharing.
BTW, went from writing this to doing something else to only click on the tab & realise I hadn’t finished… The brain fog is real!
Thank you so much for your wonderful comments Brigitte C, I understand and empathise totally. It’s so very hard to make yourself heard without seeming like you’re trying to hijack the festive times and bring everyone down, when all you’re really trying to do is make yourself heard, just as you deserve to be as a human being!
I sincerely hope you get through the period with loved ones who hear and understand you xx
Brigitte C